Neuropathic Pain is highly difficult to treat and few medications are available.
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Please donate to RSDSA to support research for neuropathic pain & help those disabled by pain.
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WE CAN NOT DO IT ALONE
During this holiday season of thankfulness and giving, RSDSA appreciates your commitment to making an impact on the lives of those who struggle with Complex Regional Pain Syndrome (CRPS). Your financial support and kindness have enabled RSDSA to help many individuals with CRPS. This excruciatingly painful and debilitating disorder does not discriminate; it affects the lives of children, teenagers and adults 24 hours a day, 7 days a week. Sadly, each year, 50,000 new cases of CRPS are diagnosed. We at RSDSA must be prepared to meet their needs.
BUT WE CAN NOT DO IT ALONE
For more than 34 years, our commitment to provide support, education and hope to all affected by the pain and disability of CRPS remains strong. We are still determined to drive research to develop better treatments and hopefully a cure.
Because of your Generosity, in 2018 we:
Co-sponsored 250 children with CRPS (and other pain syndromes) and their families at The Center for Courageous Kids Camp. The experience allowed the campers to feel like kids again for the first time since the onset of their illness. This is our 4th year. Wheelchairs welcome!Sponsored Young Adult retreats in Austin, TX and Nashville, TN for 25 young adults (aged 18-25). Many had never met anyone who had CRPS.
Friendships, ongoing networking and a young adult committee have since developed,Sponsored conferences in San Jose, CA and Charlotte, NC attended by 400 individuals with CRPS, caregivers, and medical professionals; 14 new educational videos were added to our YouTube channel.
362 individuals with CRPS received emergency funding to pay for heat and other utilities, rent, durable medical equipment, travel expenses to obtain medical care and more, Created a new Advocacy Committee which will explore and promote the interests of the CRPS community. It will create awareness, encourage increased clinical and research funding, and promote changes in the CDC Guidelines, Answered more than 5000 emails and phone calls which poured into our office.
Our compassionate staff answered questions, provided information packets and a list of knowledgeable health professionals who understand and treat CRPS, Mailed 17,725 newsletters to individuals with CRPS, health professionals and caregivers three times a year. The newsletters, filled with the latest updates and inspiring personal stories, were also sent electronically 3 times a year to our online community.
Please make a donation Now!
Thank you for your kind consideration.
RSDSA Staff – Sincerely yours,
James Broatch, Tracy Geer, Pamela Kientzler, Jennifer Pincus,
Endra Newell, Alyce LoweJim, Tracy, Pam, Jennifer, Endra, Alyce
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The material on this site is for informational purposes only.
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It is not legal for me to provide medical advice without an examination.
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It is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.
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Comments are welcome.
This site is not for email, not for medical questions, and not for appointments.
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Please IGNORE THE ADS BELOW. They are not from me.
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I am a primary care physician in Ireland. I have been prescribing LDN for 9 years and it has utterly changed the lives of hundreds of people. The main conditions I see are fibromyalgia, chronic pain, MS, various cancers, Crohns/UC, chronic fatigue/ME, several other auto-immune diseases and one case of Interstitial Cystitis where a 30-year woman had “a fire in her bladder 24 hours a day” and who was due to have a cystectomy (bladder replaced by a plastic bag!) a month later than when she came to me by chance and soon became well.
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TV2 in Norway made a film about LDN in 2013 which was seen by 10 % of the population. The number using it there went from 300 to 15,000 in a few months. It is now on the website of http://www.lowdosenaltrexone.org in America and I was the only doctor outside Norway who was involved. I agreed to partake if they subtitled it in English which they did.
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.Yes
Yes. Opioids cause pain. Naltexone relieves, and often resolves pain.
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My comment:
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Based on the work posted on these pages, RSDS.org sent scientists and specialists to my office in 2010. Over two days I introduced them to eight of my patients with years of intractable chronic pain, all of whom responded to low dose naltrexone, four of whom required treatment only one month with sustained pain relief for years! RSDS is now funding a study on LDN for CRPS at Stanford.
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Norway has well known large cities, UNESCO heritage sites and this absolutely gorgeous small seaport village Reine on an island in the Lofoten archipelago, above the Arctic Circle. It was “selected as the most beautiful village in Norway by the largest weekly magazine in Norway (Allers) in the late 1970’s” and is visited by many thousands annually. “Lofoten is known for a distinctive scenery with dramatic mountains and peaks, open sea and sheltered bays, beaches and untouched lands. Though lying within the Arctic Circle, the archipelago experiences one of the world’s largest elevated temperature anomalies relative to its high latitude. Lowest temperature ranges from 28.4 to 35.6 degrees F. The warmest recording in Svolvær is 30.4 °C (87 °F).
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